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Vlog About Chronic Illness

Hi. My name is Felecia. I’m from Portland, Oregon. I’m a social worker and a songwriter. And this is a little bit about my life with
AS and how life goes on if you just keep moving. When I play music, I forget that I have any
problems at all– Not just AS or any of the diseases it comes with. It makes my soul dance a little bit. After a show sometimes, I get a little tired. The brain fog builds up. That’s the hardest part. It helps though because little things in everyday AS life– Like remembering to take medications or to sit up straight– You know, that
memorization is a really good technique to have for music. Go on lots of walks. Walking is very therapeutic for me. Playing music. Just finding a good chord progression will
make my body feel a little less painful. Hey, did you know the ankylosaurus was a real dinosaur? – I didn’t know that
It had a fused spine. I go there Grab a warm blanket
Stick a cold needle in my arm I’m loaded on antihistamines
And they kill what’s left inside of me I’m going in every 6 weeks and they still
remember me Even though I’m starting to disappear I’m counting on – 3 days of sleepless nights Chest pains and bright lights
Stinging my eyes so bad I can’t even read My favorite books sit on shelves waiting to
be loved and held The way this disease holds me
And it’s a music infusion Stick it into me —
Carolina, bring me my pills Can’t always get them refilled
All these scripts spell my name backwards Have you ever felt so much pain? You know I don’t like to complain
But sometimes I do I’m too damn — Little to have all these big
words Infecting me and my world
I’ve been through hell and back And it never stops
It never stops I wake up and find myself right where I started
out Well it’s a music infusion
Take it out Why won’t you, won’t you take it out I feel weak on in the inside So how can I be strong on outside? I’m trapped within this body
I can’t play But you can’t sing the way I do The way I do —
The way I do —
The way I do…

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