Disease Treat

Know About Ulcers Blog

(upbeat music) – It’s quite a diverse role. I tend to meet people at the
point of being diagnosed, and I would always introduce myself as their first point of contact for when they go home,
for advice and support. I would talk to them about
inflammatory bowel disease, what it is, types of
treatment that we would use, and so my role in that sense is very much about education and support. On a day-to-day basis, I would
see patients if they’re sick and they come into
hospital with a relapse, I might go and see them and support them as part of their in-patient stay. But a lot of my work is actually supporting our IBD cohort at home. So I offer a telephone advice service, a support service for families, so if they get stuck, they’re
worried about their child, they think they might
be relapsing at home, their first point of contact would be me. And they would ring me up, and I’d get back to them
with advice and support. And assessing their IBD as
much as I can over the phone to work out whether we
can manage this at home, or do they need to come into hospital. (upbeat music) I think it varies. And so I think for new
patients, it’s very much, I’d say the most common question
I get asked is about diet, and is there a specific
diet that they can follow that will keep them well. So I think diet’s a big one. I think a common question I get asked as well is what causes IBD? And is there anything that
the families have done wrong? And is there anything that they’ve done that’s caused this to happen? Moving forward, I think a
lot of families want to know what they can do to prevent
it happening in future, to prevent flare-ups from
happening in the future. So I think they’re the common
questions that I get asked. It’s very much about what causes it? Is there a cure? And what can they do as
parents, and as a family, to try and keep their
child as well as possible? (upbeat music) So the advice that I tend to give is that whilst inflammatory bowel disease is not curable, it is treatable. And I will often explain that we’ve got a big cohort of children that we care for, and over the years we’ve cared for literally thousands of patients, and whilst it’s not
curable, it is treatable. And there’s not one single child that we haven’t been able to get better. It might have taken time,
those children might have been on a long journey to get better, but there’s not a single
child that has not got better. That’s not to say they’re cured, but they have got their
quality of life back, they’re back at school, and
life’s become more normal again. (upbeat music) So I’ve been in this job for 10 years, and I can see a massive
change in the treatment. So I think originally, treatment was very much a bottom-up approach. So use of modulen –
exclusive enteral nutrition – for Crohn’s patients, use of steroids in the form of prednisone,
and methotrexate for some patients, and infliximab. But I think things have
moved on a pace now, and in addition to infliximab, we’ve obviously got adalimumab. So that’s good for patients to try where they’ve failed on infliximab. And a major change that
we’ve seen recently is the use of vedolizumab, which is one of the newer biologic drugs. And so I very much get a sense that the research that’s coming out now, there’s a lot of biologic drugs that are going to be coming to the
fore in the next few years, and that’s where I see the
treatment moving towards. So we’ve been on that journey for a while, but I think they’re
refining the biologics, and I think that’s
where we’re going to see a big move towards those newer
treatments in the future. (upbeat music) I very much see the treatment
of IBD is working together. And I think, obviously,
there’s a team around that child that looks after them,
a multi-disciplinary team, and obviously in hospital
that’s quite a tight team, but children live in the community, they live at home, they go to school, and so I think it is
about us working together not only as a medical community, but I think the social
community around that child. And really trying to
bring everybody together to support the child and the family. I think in terms of
medically working together, it’s about establishing
networks across the specialties so that we’re not just seeing Newcastle, we’re not just working in isolation. We need to share knowledge,
and I think that’s about making sure that we go to conferences, that we’re part of research, and contributing towards that agenda. And then sharing the information
amongst professionals so that that can then relate
to, in real-life practice, that children benefit from the fact that health professionals are working together. (upbeat music)

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